by Suzanne Tierney | May 25, 2024 | Blog
2024 National Advocacy Summit By Suzanne Tierney, Lupus Patient First The 2024 National Lupus Advocacy Summit was held in Washington D.C. from May 19th through May 21st. The purpose of the Summit is to bring lupus warriors together from all over the country to learn...
by Suzanne Tierney | Apr 20, 2024 | Blog
Spring Cleaning Tips for Life with a Chronic Illness Life with a chronic illness is hard. Lupus patients often have fatigue, joint pain, strained ligaments, muscular pain, headaches, and a host of other symptoms. These symptoms often interfere with daily life. Many...
by Suzanne Tierney | Mar 28, 2024 | Blog
Being diagnosed at a young age has been a lot for me during my life – some good and some bad. The diagnosis itself has caused my life not to go the way I planned or thought, but it’s surely helped me grow over time. I was diagnosed with SLE at 18. I was unable...
by Suzanne Tierney | Feb 28, 2024 | Blog
Pursuing Fitness As a Lupus Patient Living with lupus poses unique challenges, especially when it comes to maintaining physical activity. The pain and fatigue associated with this autoimmune disease can make exercise seem like an uphill battle. However, incorporating...
by Suzanne Tierney | Jan 24, 2024 | Blog
Lupus Foundation of America, Greater Ohio Chapter Assistance Programs The LFA, GOC’s Assistance Programs were created as a response to a needs assessment survey of lupus warriors in the state of Ohio. The results showed that lupians would benefit from some help with...
by Vicki Dishon, MHS, PA-C | Dec 28, 2023 | Blog
Causes of Diagnosis Delay For many people with lupus, the average diagnosis delay is six years from the onset of symptoms. Misdiagnosis with another condition often contributes to the time delay before establishment of a proper diagnosis of lupus. The symptoms of...