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PATIENT STORIES

Ashley’s Fight

Sep 28, 2020 | Patient Stories

Calendar

August 29, 2026
  • Walk to End Lupus Now® - Columbus

    Clock IconDate & Time of Event:
    August 29, 2026  8:00 am - 11:00 am
    Marker IconEvent Location:
    Wolfe Park, Columbus, OH, USA
    About the event:

    The Lupus Foundation of America, Greater Ohio Chapter (LFA, GOC) is excited to announce the date for the Columbus Walk to End Lupus Now®!  The LFA, GOC welcomes everyone to participate on Saturday August 29th,2026 at Wolfe Park!

    Register now, create your walk page, set your individual fundraising goal, and begin soliciting donations from your network of supporters. Your contributions further critical lupus research and strengthen Ohio lupus support programs. The Walk to End Lupus Now® is meant to empower individuals to become fundraisers so that they can directly make a difference in the lives of those impacted by lupus.

    Register Here: https://lfaohio.salsalabs.org/WalktoEndLupusNowColumbus2026?page=register

    CLICK HERE FOR FULL EVENT DETAILS

  • Columbus Support Group

    Clock IconDate & Time of Event:
    August 29, 2026  4:00 pm - 6:00 pm
    Marker IconEvent Location:
    About the event:

    Virtual Meeting Link: https://meet.goto.com/SuzanneTierney1/lupus-support

    Facilitator: Samantha

    CLICK HERE FOR FULL EVENT DETAILS

September 1, 2026
  • Call-In/Virtual Support Group

    Clock IconDate & Time of Event:
    September 1, 2026  7:00 pm - 8:00 pm
    Marker IconEvent Location:
    About the event:

    This is a hybrid group.  Participants can join by phone or by computer.


    Call In Phone Number - 1 877 309 2073  Access Code: 216-638-181

    Virtual Meeting Link - https://meet.goto.com/SuzanneTierney1/lupus-support


    Facilitator: Lisa Breiding

    CLICK HERE FOR FULL EVENT DETAILS

  • Northern Cincinnati Support Group

    Clock IconDate & Time of Event:
    September 1, 2026  7:00 pm - 9:00 pm
    Marker IconEvent Location:
    Panera Bread, 5095 Deerfield Blvd, Mason, OH 45040, USA
    About the event:

    Look for the table with a purple butterfly!

    Facilitator: Allison

    CLICK HERE FOR FULL EVENT DETAILS

My journey actually started at 16 when I was diagnosed with Raynaud’s disease. I wasn’t diagnosed with lupus until age 21. Since then, it has been an up and down journey with a lot of challenges. I’ve dealt with a wide range of issues including migraines, arthritis, lupus nephritis, tachycardia, autonomic dysfunction, and vasculitis. Two years ago, I even shaved my head because I had severe hair loss for 8 months. My treatments range from 20-some pills a day to multiple doses of IV steroids to IV biologic treatments. I recently began immunoglobulin replacement therapy that will be once a week for the rest of my life. While lupus research has certainly come a long way, long term immunosuppression from steroids and other medications still have a high cost to patients, with complications such as osteopenia at the age of 31 and now losing my immune system completely. Raising awareness is incredibly important to me and gives my journey purpose. My mantra is always continue to – Fight * Live * Love!

Calendar

August 29, 2026
  • Walk to End Lupus Now® - Columbus

    Clock IconDate & Time of Event:
    August 29, 2026  8:00 am - 11:00 am
    Marker IconEvent Location:
    Wolfe Park, Columbus, OH, USA
    About the event:

    The Lupus Foundation of America, Greater Ohio Chapter (LFA, GOC) is excited to announce the date for the Columbus Walk to End Lupus Now®!  The LFA, GOC welcomes everyone to participate on Saturday August 29th,2026 at Wolfe Park!

    Register now, create your walk page, set your individual fundraising goal, and begin soliciting donations from your network of supporters. Your contributions further critical lupus research and strengthen Ohio lupus support programs. The Walk to End Lupus Now® is meant to empower individuals to become fundraisers so that they can directly make a difference in the lives of those impacted by lupus.

    Register Here: https://lfaohio.salsalabs.org/WalktoEndLupusNowColumbus2026?page=register

    CLICK HERE FOR FULL EVENT DETAILS

  • Columbus Support Group

    Clock IconDate & Time of Event:
    August 29, 2026  4:00 pm - 6:00 pm
    Marker IconEvent Location:
    About the event:

    Virtual Meeting Link: https://meet.goto.com/SuzanneTierney1/lupus-support

    Facilitator: Samantha

    CLICK HERE FOR FULL EVENT DETAILS

September 1, 2026
  • Call-In/Virtual Support Group

    Clock IconDate & Time of Event:
    September 1, 2026  7:00 pm - 8:00 pm
    Marker IconEvent Location:
    About the event:

    This is a hybrid group.  Participants can join by phone or by computer.


    Call In Phone Number - 1 877 309 2073  Access Code: 216-638-181

    Virtual Meeting Link - https://meet.goto.com/SuzanneTierney1/lupus-support


    Facilitator: Lisa Breiding

    CLICK HERE FOR FULL EVENT DETAILS

  • Northern Cincinnati Support Group

    Clock IconDate & Time of Event:
    September 1, 2026  7:00 pm - 9:00 pm
    Marker IconEvent Location:
    Panera Bread, 5095 Deerfield Blvd, Mason, OH 45040, USA
    About the event:

    Look for the table with a purple butterfly!

    Facilitator: Allison

    CLICK HERE FOR FULL EVENT DETAILS

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