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PATIENT STORIES

Natalie’s Voice

Sep 18, 2020 | Patient Stories

Calendar

May 16, 2026
  • Ride For Lupus!

    Clock IconDate & Time of Event:
    May 16, 2026  9:00 am - 9:00 am
    Marker IconEvent Location:
    279 Canal St, Lancaster, OH 43130, USA
    About the event:

    Join the PLEMC OH - Sherman Chapter for a ride for lupus!  The escorted ride will begin and end at the American Legion in Lancaster and will feature a silent auction, 50/50 raffle, food and great fun!  Registration starts and 9:00am and ends at 11:00am.  Fee's are $20 per rider and $5 per passenger.  Jeeps are welcome and can be registered for $25 per Jeep.

    CLICK HERE FOR FULL EVENT DETAILS

  • Lupus Live! Biologics & Cardiac Care

    Clock IconDate & Time of Event:
    May 16, 2026  10:00 am - 12:00 pm
    Marker IconEvent Location:
    12930 Chippewa Rd, Brecksville, OH 44141, USA
    About the event:

    This will be a hybrid educational event that can be attended in person or virtually!  Click here to register https://lfaohio.salsalabs.org/lupuslivebiologicscardiaccare/index.html

    CLICK HERE FOR FULL EVENT DETAILS

  • SE Cleveland Support Group

    Clock IconDate & Time of Event:
    May 16, 2026  11:00 am - 12:00 pm
    Marker IconEvent Location:
    Bedford Branch, 70 Columbus Rd, Bedford, OH 44146, USA
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

My name is Natalie, and I have had lupus for about 20 years. Through no genetic correlations, over the years I have developed type 1 insulin resistant diabetes, Hashimoto’s thyroid disease, gastroparesis, nerve damage, fibromyalgia, gallbladder issues, and heart conditions requiring a pacemaker, along with other miscellaneous malfunctions as I like to call them…I am not the average 30-year-old; most do not understand my daily struggles or fears of not being able to wake up one day. It is a hard and lonely path for those with “invisible” illnesses. A cure feels unlikely after all these years and I begin to question how functional I will be in the next 10. We shouldn’t have to feel this way though. We need answers and we need hope to sustain us in our journeys. We need good medical care and insurance that doesn’t require a fight at every step. Not every day will be easy, but every day shouldn’t have to be this hard. On the outside all seems well, but on the inside, I fight every day to appear healthy and get through the day so that I can get through the next.

Calendar

May 16, 2026
  • Ride For Lupus!

    Clock IconDate & Time of Event:
    May 16, 2026  9:00 am - 9:00 am
    Marker IconEvent Location:
    279 Canal St, Lancaster, OH 43130, USA
    About the event:

    Join the PLEMC OH - Sherman Chapter for a ride for lupus!  The escorted ride will begin and end at the American Legion in Lancaster and will feature a silent auction, 50/50 raffle, food and great fun!  Registration starts and 9:00am and ends at 11:00am.  Fee's are $20 per rider and $5 per passenger.  Jeeps are welcome and can be registered for $25 per Jeep.

    CLICK HERE FOR FULL EVENT DETAILS

  • Lupus Live! Biologics & Cardiac Care

    Clock IconDate & Time of Event:
    May 16, 2026  10:00 am - 12:00 pm
    Marker IconEvent Location:
    12930 Chippewa Rd, Brecksville, OH 44141, USA
    About the event:

    This will be a hybrid educational event that can be attended in person or virtually!  Click here to register https://lfaohio.salsalabs.org/lupuslivebiologicscardiaccare/index.html

    CLICK HERE FOR FULL EVENT DETAILS

  • SE Cleveland Support Group

    Clock IconDate & Time of Event:
    May 16, 2026  11:00 am - 12:00 pm
    Marker IconEvent Location:
    Bedford Branch, 70 Columbus Rd, Bedford, OH 44146, USA
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

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