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PATIENT STORIES

Ashley’s Fight

Sep 28, 2020 | Patient Stories

Calendar

July 15, 2024
July 16, 2024
  • Westerville Support Group

    Clock IconDate & Time of Event:
    July 16, 2024  6:30 pm - 8:00 pm
    Marker IconEvent Location:
    Virtual Meeting
    About the event:

    Third Tuesday of the Month

    Facilitator: Katie

    CLICK HERE FOR FULL EVENT DETAILS

  • Damascus Support Group

    Clock IconDate & Time of Event:
    July 16, 2024  7:00 pm - 8:30 pm
    Marker IconEvent Location:
    Pizza Hut, 325 W State St, Salem, OH 44460, USA
    About the event:

    Facilitator: Diana Flemming

    Meeting Location:
    Pizza Hut
    325 W State St
    Salem, OH 44460, USA

    CLICK HERE FOR FULL EVENT DETAILS

July 17, 2024

My journey actually started at 16 when I was diagnosed with Raynaud’s disease. I wasn’t diagnosed with lupus until age 21. Since then, it has been an up and down journey with a lot of challenges. I’ve dealt with a wide range of issues including migraines, arthritis, lupus nephritis, tachycardia, autonomic dysfunction, and vasculitis. Two years ago, I even shaved my head because I had severe hair loss for 8 months. My treatments range from 20-some pills a day to multiple doses of IV steroids to IV biologic treatments. I recently began immunoglobulin replacement therapy that will be once a week for the rest of my life. While lupus research has certainly come a long way, long term immunosuppression from steroids and other medications still have a high cost to patients, with complications such as osteopenia at the age of 31 and now losing my immune system completely. Raising awareness is incredibly important to me and gives my journey purpose. My mantra is always continue to – Fight * Live * Love!

Calendar

July 15, 2024
July 16, 2024
  • Westerville Support Group

    Clock IconDate & Time of Event:
    July 16, 2024  6:30 pm - 8:00 pm
    Marker IconEvent Location:
    Virtual Meeting
    About the event:

    Third Tuesday of the Month

    Facilitator: Katie

    CLICK HERE FOR FULL EVENT DETAILS

  • Damascus Support Group

    Clock IconDate & Time of Event:
    July 16, 2024  7:00 pm - 8:30 pm
    Marker IconEvent Location:
    Pizza Hut, 325 W State St, Salem, OH 44460, USA
    About the event:

    Facilitator: Diana Flemming

    Meeting Location:
    Pizza Hut
    325 W State St
    Salem, OH 44460, USA

    CLICK HERE FOR FULL EVENT DETAILS

July 17, 2024

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