Lupus Foundation of America Greater Ohio Chapter Logo

Toll Free: 1 (888) NO-LUPUS
Phone: (440) 717-0183

Help Us Solve The Cruel MysteryTM

Donate To The Ohio Chapter


Ashley’s Fight

My journey actually started at 16 when I was diagnosed with Raynaud’s disease. I wasn’t diagnosed with lupus until age 21. Since then, it has been an up and down journey with a lot of challenges. I’ve dealt with a wide range of issues including migraines, arthritis, lupus nephritis, tachycardia, autonomic dysfunction, and vasculitis. Two years ago, I even shaved my head because I had severe hair loss for 8 months. My treatments range from 20-some pills a day to multiple doses of IV steroids to IV biologic treatments. I recently began immunoglobulin replacement therapy that will be once a week for the rest of my life. While lupus research has certainly come a long way, long term immunosuppression from steroids and other medications still have a high cost to patients, with complications such as osteopenia at the age of 31 and now losing my immune system completely. Raising awareness is incredibly important to me and gives my journey purpose. My mantra is always continue to – Fight * Live * Love!

Want to share your story?

Your stories are what help bring comfort, empowerment, understanding and light to others who may also be suffering. If you have a story you would like to share, please send in your story to us our story form.

Discover Other Patient Stories

Dee’s Advice

Dee’s Advice

My life is a three-ring least that is what it feels like some days. I never know what the day may bring or if my body and mind will cooperate. Having lupus...

read more
Skip to content