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Our Trip to Capitol Hill
2024 National Advocacy Summit By Suzanne Tierney, Lupus Patient First The 2024 National Lupus Advocacy Summit was held in Washington D.C. from May 19th through May 21st. The purpose of the Summit is to bring lupus...
Spring Cleaning Tips
Spring Cleaning Tips for Life with a Chronic Illness Life with a chronic illness is hard. Lupus patients often have fatigue, joint pain, strained ligaments, muscular pain, headaches, and a host of other symptoms. These...
Growing With Lupus
Being diagnosed at a young age has been a lot for me during my life - some good and some bad. The diagnosis itself has caused my life not to go the way I planned or thought, but it’s surely helped me grow over time. I...
Living Fit With lupus
Pursuing Fitness As a Lupus Patient Living with lupus poses unique challenges, especially when it comes to maintaining physical activity. The pain and fatigue associated with this autoimmune disease can make exercise...
Assistance Programs For Patients!
Lupus Foundation of America, Greater Ohio Chapter Assistance Programs The LFA, GOC’s Assistance Programs were created as a response to a needs assessment survey of lupus warriors in the state of Ohio. The results...
Why is Lupus Difficult to Diagnose?
Causes of Diagnosis Delay For many people with lupus, the average diagnosis delay is six years from the onset of symptoms. Misdiagnosis with another condition often contributes to the time delay before establishment of...