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GREATER OHIO CHAPTER

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PATIENT STORIES

Tim’s Story

My lupus story started well before I was officially diagnosed in May of 2013 at 32 years old. I was suffering from joint pain and couldn’t understand why, at such a young age, I was having this pain. One day, I woke up to go to work and couldn’t get out of bed. I thought it was the flu because I was in horrible pain and had severe fatigue. However, after several tests and hospital visits, I was informed by my rheumatologist that I had lupus. I was so misinformed in believing that only women could get lupus. I eventually came to accept that I had the disease. I’ve had depression, blood clots, heart and neurological issues. Flares usually include hair loss, so now I keep my head bald. I continue to work full-time, but there are periods where I am forced to take time off due to a severe flare. I go to support groups to deal with my illness and get educated. I also have tremendous support from my wife and daughter who are extremely understanding. I have made it my personal mission to inform and educate people about lupus because so many people don’t know what it is.

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Your stories are what help bring comfort, empowerment, understanding and light to others who may also be suffering. If you have a story you would like to share, please send in your story to us our story form.

Discover Other Patient Stories


Ashley’s Fight

Ashley’s Fight

My journey actually started at 16 when I was diagnosed with Raynaud's disease. I wasn't diagnosed with lupus until age 21. Since then, it has been an up and down...

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Natalie’s Voice

Natalie’s Voice

My name is Natalie, and I have had lupus for about 20 years. Through no genetic correlations, over the years I have developed type 1 insulin resistant diabetes,...

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