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Click one of the stories below to read the words of a lupus patient.

The Connection Between Giving and Gratitude

The Connection Between Giving and Gratitude It’s the time of year when giving is on everybody’s mind. It often feels overwhelming to be asked to donate to so many causes. Feed the hungry, clothe the poor, and do more. How does one even begin to feel worthy if they...

Because of Lupus…

It was a clear, sunny summer morning. I did not have any lupus symptoms other than the usual swollen hands and feet that goes away after I stretch. I had gotten ready for my internship and had some time to spare before I left.  I decided to take my dog out one last...

Purple Pledge

Purple Pledge

Help Raise Awareness! May is Lupus Awareness Month! It is a name to be taken literally. We put extra effort into letting the world know about lupus. We educate communities and join together to raise funds and awareness of lupus. We let the world know what lupus is,...

Lupus and Autoimmune Overlap Syndrome

Lupus and Autoimmune Overlap Syndrome

When patients are diagnosed with two or more autoimmune diseases it is called autoimmune overlap syndrome.    Lupus Diagnosis  I was diagnosed with systemic lupus in 1989 after months of severe fatigue, joint pain, and stiffness that moved around to different...

Be Fierce. Take Control.

Be Fierce. Take Control.

The American College of Rheumatology (ACR) and the Lupus Foundation of America (LFA) are teaming up to help increase lupus awareness and reduce the time to diagnosis. Lupus is a disease that is known for being difficult to diagnose because the symptoms are different...

Lupus, Brain Fog, and Me

Lupus, Brain Fog, and Me

I was 13 years old when I was diagnosed with lupus and started experiencing Brain Fog.  I didn’t expect much about my life to change after receiving my diagnosis. At the time, I had no idea that lupus would have menacing effects on my brain that would continue into my...

A Cautionary Tale of Lupus

What seemed like many moons ago, which, in reality, was only 35 years ago, I remember sitting in a doctor’s office with my mom.  Now, I don’t remember the doctor or every detail, but I do remember we were there because my mom was having some weird skin reactions and...

Growing up around Lupus

My mom was diagnosed with lupus in her 20’s, years before she had me. She then started working at the Lupus Foundation of America, Greater Ohio Chapter (LFA, GOC) in 2008. I grew up around lupus and the LFA, GOC. I have gone from volunteering at walks and stuffing...

My Post-COVID Lessons

What an incredible journey we have all been through.  I was certainly not prepared for a pandemic.  I thought it only happened in the movies.  To live through it and survive is beyond my mental being.  As I reflect on the past year, I know there will be several novels...

Is it Safe Yet? But it’s Springtime!

As more and more people become vaccinated and Spring arrives, there appears to be a sense of optimism that we can go back to a normal, pre-COVID world. The reality is our normal may look vastly different for a while. As cases of COVID -19 still rise across the...

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