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PATIENT STORIES

Natalie’s Voice

Sep 18, 2020 | Patient Stories

Calendar

March 15, 2025
  • SE Cleveland Support Group

    Clock IconDate & Time of Event:
    March 15, 2025  11:00 am - 12:30 pm
    Marker IconEvent Location:
    Maple Heights Branch of Cuyahoga County Public Library, 5225 Library Ln, Maple Heights, OH 44137, USA
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

March 18, 2025
  • Westerville Support Group

    Clock IconDate & Time of Event:
    March 18, 2025  6:30 pm - 8:00 pm
    Marker IconEvent Location:
    Virtual Meeting
    About the event:

    Third Tuesday of the Month

    Click here to join the meeting:
    https://www.gotomeet.me/SuzanneTierney1/lupus-support

    You can also dial in using your phone.
    United States (Toll Free): 1 877 309 2073
    United States: +1 (571) 317-3129

    Access Code: 216-638-181

    Facilitator: Katie

    CLICK HERE FOR FULL EVENT DETAILS

My name is Natalie, and I have had lupus for about 20 years. Through no genetic correlations, over the years I have developed type 1 insulin resistant diabetes, Hashimoto’s thyroid disease, gastroparesis, nerve damage, fibromyalgia, gallbladder issues, and heart conditions requiring a pacemaker, along with other miscellaneous malfunctions as I like to call them…I am not the average 30-year-old; most do not understand my daily struggles or fears of not being able to wake up one day. It is a hard and lonely path for those with “invisible” illnesses. A cure feels unlikely after all these years and I begin to question how functional I will be in the next 10. We shouldn’t have to feel this way though. We need answers and we need hope to sustain us in our journeys. We need good medical care and insurance that doesn’t require a fight at every step. Not every day will be easy, but every day shouldn’t have to be this hard. On the outside all seems well, but on the inside, I fight every day to appear healthy and get through the day so that I can get through the next.

Calendar

March 15, 2025
  • SE Cleveland Support Group

    Clock IconDate & Time of Event:
    March 15, 2025  11:00 am - 12:30 pm
    Marker IconEvent Location:
    Maple Heights Branch of Cuyahoga County Public Library, 5225 Library Ln, Maple Heights, OH 44137, USA
    About the event:

    CLICK HERE FOR FULL EVENT DETAILS

March 18, 2025
  • Westerville Support Group

    Clock IconDate & Time of Event:
    March 18, 2025  6:30 pm - 8:00 pm
    Marker IconEvent Location:
    Virtual Meeting
    About the event:

    Third Tuesday of the Month

    Click here to join the meeting:
    https://www.gotomeet.me/SuzanneTierney1/lupus-support

    You can also dial in using your phone.
    United States (Toll Free): 1 877 309 2073
    United States: +1 (571) 317-3129

    Access Code: 216-638-181

    Facilitator: Katie

    CLICK HERE FOR FULL EVENT DETAILS

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