In a new study, researchers examined the associations between health literacy with patient-reported outcomes and systemic lupus erythematosus (SLE) disease activity and damage. Findings showed that limited health literacy remains a critical social determinant of health and is negatively associated with multiple clinical outcomes for people with SLE.
A group of 267 Black women living with active SLE and enrolled in a lupus self-management program were examined. Each woman completed surveys and assessments to evaluate their lupus disease activity and damage, patient activation (behavior and engagement in managing ones’ health and health care), self-efficacy, physician/patient communication, and quality of life. Researchers found that 33% of the group had limited health literacy. These women were significantly more likely to have worse patient-reported and clinical outcomes, including lower patient activation, lower self-efficacy, higher anxiety, increased likelihood of depression (2.4 times greater risk), and higher lupus disease activity and damage compared to those with adequate health literacy.
This study suggests that health literacy is crucial in clinical care. Healthcare providers should use patient-focused language and clear communication when discussing treatment plans and medications with their patients. Further research is needed to explore effective strategies to improve health literacy and to understand the long-term impact and outcomes for people with SLE. Learn more about the Lupus Foundation of America’s Commitment to Addressing Health Disparities.
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